About Hayden's Hope

 

A Note from Dari and Jenn Nowkhah …

39 days.  39 days is how long we had our baby boy, Hayden.  On August 12, 2011, Hayden Michael Nowkhah was born -- the picture of perfect health.   Six days later, Hayden was back in the hospital with a 102 degree fever.    A virus caused that fever.  That same virus attacked little Hayden's heart.   His perfect health was gone and within a matter of days, Hayden was near the top of the heart transplant list.   How could this happen to a baby that had not one single health concern at birth?   There is no answer. 

Hayden did not get the heart he needed to survive.  We made the decision to let Hayden go.  He had suffered enough.

We have started "Hayden's Hope" to raise awareness for pediatric organ donation.  In addition, Hayden's Hope, working in conjunction with the Children's Organ Transplant Association (COTA), is raising money to cover transplant-related expenses in honor of children awaiting life-saving transplants.   Medical bills, travel costs to and from transplant centers, lengthy stays away from home and in many cases, job loss affects transplant families and crushes them financially.  COTA families receive 100% of the money raised through Hayden's Hope.   It is our hope that Hayden's story inspires others to help children achieve the successful transplants they deserve so that they can live the life they were meant to live.